Endless Road Tour – 2013

The first full year of the Endless Road Tour has been ridden hard and put away wet.  As I write this I’m within a few hundred miles of the 50,000 mile mark of the million mile goal, and I cannot help but think it was a good year.

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I know I’m behind in predicted miles, but 50,000 miles is 5% of the way.   Between the growing number of followers and supporters of my journey, and the hundreds of MS patients I have had the privilege of  sharing my story and words of encouragement to; I’d rate interest pretty high!

 

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Two different makers of MS medications have invited me to share my story to patients across the east, and had it not been for that damn Polar Vortex fiasco in November, I would have made it out west! I was able to speak at dozens of events last year from Atlanta to Brooklyn to Bangor. I was involved in a national broadcasted patient event that was streamed live on the web and to audiences at over 100 locations across the country. It  turned out to be the largest live event of it’s type for introducing any type of medication, in history!

My story was featured in a few more magazines, I wrote a couple of articles for Iron Butt Magazine, and I have yet to be fired from my regular column in ABILITY Magazine. My website audience is growing, over 120,000 hits just this January! I presented my seminar at Americade in New York, at the AMA Vintage Motorcycle Days in Ohio, and out in Minnesota for Aerostich’s 30th Anniversary Rally. Lots of bookings for this year too.

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Although I was unable to attempt breaking the 31,000 mile in 31 day world record in April as I had wanted, thanks to riders across the country and Canada, the MS5000 fundraiser raised $23,000 for the National MS Society!

The rules have changed this year, riders need to reach 5000 points by combining miles and dollars raised, so one can be a finisher without having to ride all 5000 miles. This year, I have set the goal at $50,000. Did I mention REGISTRATION IS NOW OPEN?

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If you ride, please strongly consider entering the MS5000, if you don’t ride, please support someone who is. This is the only fundraiser I run. My hope is that someday it gets enough participation to be an officially promoted  fundraiser for the National MS Society like Walk MS and Bike MS. Just like last year, 100% of money raised goes directly to the MS Society.

Yesterday, The Endless Road Tour was just an idea. Today, it has become my life. Tomorrow, it will become my career and play a major part in treating and managing the symptoms of my disease.

Every time I share my story, whether it be in front of a group of MS patients looking for hope or encouragement, or in front of 100 motorcyclists wondering what kind of idiot rides an antiquated Russian Motorcycle in “The World’s Toughest Motorcycle Rally”, I never leave without knowing that I have informed, entertained or encouraged someone to renew an old passion or find a brand new one. I truly feel I am making a difference and I will forever be thankful to both the pharmaceutical companies and motorcycle event coordinators who have given my voice a megaphone.

I’m on bike #2 of this journey, a Yamaha Super Tenere I bought new at the end of March. I’ve put 30,000 miles on it and it has broken in nicely, not a single complaint with it, and glad I bought it. The accessories from Twisted Throttle and Bill Mayer Saddles have personalized the bike for me, and the support from Bridgestone Tires is one I often forget to mention, but going through five sets of tires this year  would have been one big donut hole in my wallet. Gracias.
So many others have helped along the way as well, I can’t help be proud of the cooling system prototype I tested and then published about, looks like it is taking off and heading for production, possibly this year. Cool, and glad I could help.

In April, I switched to a new platform  therapy for Multiple Sclerosis. I shouldn’t have to explain the joy of no longer injecting on a daily basis. Today, because of research, we have 10 disease modifying medications that slow the progression and help reduce the number of lesions caused by MS to the nervous systems. My drug of choice today is a pill.

I have been rewarded greatly this past year.  Riding, writing and reaching out has been therapy for my disease. The power of living, riding every day possible and loving every part of the journey so far has been miraculous for treating my MS. I have seen no progression of my disease this year. It has to be the riding. I am riding into remission, I am riding for my life.

I tell my audiences, “When I ride my motorcycle, I don’t have MS.”

This is not a cliché, not anymore for me. I am gathering proof. And, I have a Doctor’s note. A real Doctor, and a real prescription. To ride my motorcycle. You’ll see.

I am working on a brand new seminar and it will premiere  at the Americade Rally in June, you might want to check out.

MotoMedicine: Riding For Medicinal Purposes

Watch for it.

It was one hell of a first year.

The only thing I didn’t do last year was wash my bike. Seriously.

Hey 2014,

Bring it on!

Longhaulpaul

Any day you can ride is a good day.

 

 

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“Show Us Your Stits”

Bikers have had a bad reputation since Marlin Brando in The Wild One. Put a bunch of them together and you are just asking for trouble.  Crazed and wasted,  leather clad Neanderthals screech into town engulfed in a cloud of dirt-road dust and over-jetted hydrocarbonated  smog. They commandeer the local saloon, chase the Sherriff out of town, rape the women and beat the hell out of everyone who try to stop them. After the untamed parolees destroy the town, they ride off with all the pretty women and skinny boys.

Well, except for a bunch of bikers getting together,  Aerostich’s  Very Boring Rally 3  was nothing at all like that!

 

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It was not long after I gave my first motorcycle friendly presentation of, “Having MS is Like Riding a Russian URAL in the Iron Butt Rally“, did  I receive an invitation from Andy Goldfine to do a similar seminar at the Very Boring Rally 3 and Aerostich’s  30 Anniversary celebration which took place this August.  I gladly accepted; I was unable to attend their first two rallies and really looked forward to meeting Mr. Subjective, Andy Goldfine and the staff I knew only from afar. The high quality and innovative motorcycle gear they make and sell direct from their Duluth factory has been part of my riding for many years. I won’t get on my bike unless I’m wearing my “Stich”.  If my math is correct, I wear out five motorcycles to each riding suit from Aerostich I’ve owned! See my review of the Aerostich Roadcrafter suit I wear here.

I made the decision to take the 1500 mile scenic route to Duluth Minnesota traveling by way of the Trans-Canada Highway over Lake Superior. I planned to take two days to get there because it was all two lane roads.  I made it to the Lake Champlain ferry just in time for my morning pee break. Probably would have been smarter to go before the ship started moving.

 

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I rode all day and stayed in Sault Sainte Marie, Ontario, taking full advantage of my CTC100 prototype cooling system. I can not reiterate the fact that my riding this summer was possible because I was able to stay cool. It looks like the system is on it’s way to becoming manufactured and publically available.  I will certainly keep my readers in the loop!

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I tried to match the temperature to my speed…..

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I parked the bike, showered and went scrounging for  vittles and a cold beer.  When I checked in, I inquired about a decent restaurant and asked if the ice cream shack next door was any good.  He recommended a Portuguese Grill and said the ice cream was wonderful, in fact he ran both establishments. I went to the gas station across the street to get water and repeated my questions. The clerk agreed the Grill house was good eating but I was a bit worried when he said, “What ice cream place? I’ve worked here for a year, and I didn’t even know it was there.”

I skipped the ice cream.

 

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Ok, who ever named Superior a LAKE was an idiot, clearly it should have been labeled as an Ocean. I did a lot of heavy thinking circumventing the Superior SEA.  How the hell did someone make a map of this lake before Google? How about before airplanes?

“Hey Joe, I’ll start walking around this side, and you go the other way. Make sure you count every step, and draw every little turn on this really big roll of parchment as you walk.”  For a few hours I pondered the enormity and complexity of it all, then got lost wondering if the inventor of the first compass had a good sense of direction, or a bad sense of direction. Inventions happen both ways. Take my CLAMSICLES for instance, I like popsicles and I like clam chowder. Voilà, my patent-pending idea is the greatest thing since I invented perforated spaghetti!

 

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People often ask me if I get bored riding alone or on long trips.  The truth is I absolutely don’t. When you drive a car, your senses are comfortably asleep, detached from the road, the weather, the dangers.  You view your trip like a movie through a big glass screen. When you travel by motorcycle, you are actually in the movie.  When I ride, I am in the moment, with my thoughts and ideas, and more often than not, my mind is completely stuffed with nothing at all.  It is what I call MOTOmindfulness and it can be orgasmic!

iTunes hates me, I haven’t updated my playlist in 8 years.

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 The views around the great lake were excellent, I can’t recall when I had last seen hundreds of miles of  breathtaking Earth Art. I was surprised however, that I did not see many lobster shacks while circumventing the big pond. Maybe they do not eat a lot of lobster in Canada?

I had not made a border crossing since 9/11, and had recently got my first passport. Getting into Canada from Vermont had not been  a problem, but crossing back into the US at Thunder Bay turned out to be a bit interesting. There was a twenty minute wait, but I finally got to my turn in front of the border patrol officer. I tried to prepare myself because, as I like to say,

“My ability to  answer questions is limited only by my ability to remember the answers.”

Multiple Sclerosis has chewed into the part of my brain that spits out answers; answers that should never need searching for.

 

“Where do you live?”

Londonderry, New Hampshire.

“Where are you going?”

Duluth for a motorcycle rally.

“How long have you been in Canada?”

About 24 hours.

“What do you do for work?”

Huh?

I almost had it. I looked the guy in the eye and could not remember what I did for work. In less than 36 hours, I completely lost all memory of what I did 40 hours a week for the past five years.  I eventually cobbled together something about working for a non-profit and that I was also a seminar speaker. Even I didn’t believe myself. I pointed to the decals on my bike and said, I have MS, and I am riding a million miles to raise money and awareness. As he looked over the bike, I started regretting throwing all my medications into a single pill bottle. My cooling system prototype looked like a nuclear reactor, but at least I wasn’t hiding it, and I took some comfort in the fact that I was wearing fairly clean underwear.

“Is that an extra gas tank?”   

Yes it holds 6 gallons.

“Have a safe trip.”

I tell my audiences I have Artistic MS –  because I draw a lot of blanks.

 

I made it to Duluth Minnesota and rode up to the top of Spirit Mountain Ski area where I set free into the wind the ashes of Ardys Kellerman, a friend and motorcycle legend. Ardys rode her motorcycle everywhere, and it was her family’s wishes at her funeral that we each take a bit of her remains to spread over unique and special places we encountered on our journeys. Ardys wouldn’t be missing this cool rally. When I saw the sign Spirit Express at the top of the mountain, I knew it was the place to let her free.

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I had reservations at the Superior Inn and after checking in and showering off the 14 hours of road rouge, I ventured downtown. Canal Park, with it’s cobblestone streets and small shops tasted a lot like Portsmouth, New Hampshire. later in the evening I was able to hear Jazz bellowing from clubs down the street.  Very cool. Sad my wife was not with me; I made a mental note that this was a place I must return to, only next time with my best friend and favorite passenger.

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I sat out on the back patio of the hotel and eventually was joined by  motorcycle legend John Ryan, another speaker at the rally. John and I struck up a conversation that turned into a few hours and sharing a pizza. We casually discussed our motorcycle paths and hopes for the future. We bonded; two motorcycle enthusiasts, two travelers, two men on equally special journeys. I had retired from the crowd of long distance competitors in 2003, just a year before John showed up. I had met John a few times and we were Facebook friends who shared banter back and forth, but I had never really met him until this night.  John held the Iron Butt Association Ultimate Coast to Coast world record by riding from Prudhoe Bay, Alaska, to Key West, Fla., in 86 hours and 31 minutes. He also became the first person to ride a motorcycle 1,000 miles in 24 hours, all within the New York City limits. He had done a few other 1000 mile city rides as well.  Crazy shit! The Book by Melissa Pierson, “The Man Who Would Stop at Nothing” was written about John. He was an amazing and talented rider. Besides riding motorcycles, we were brothers of another club as well.  John was riding hard and setting world records despite being a type 1 diabetic. We both were trying to use motorcycles to promote awareness for our diseases, while giving inspiration to others who have similar diagnoses. John and I were destined to be life long friends.

John had been trying to figure out his new camera, and we spent a few hours taking pictures as the moon rose over Lake Superior. These pictures start with ones from the back patio of the hotel, the boardwalk and bike path that ran parallel to the shore; and end with my favorites, John Charles Ryan, Shooting for the moon.

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It was just a few weeks after returning home when I learned of John’s fatal motorcycle accident.  Life long friends sometimes have to go long periods without seeing one other, but I know when I do see my friend again, we will pick up right where we had left off, joking about starting a biker gang called The Afflicted Riders.  Ride in Peace my friend.

 

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I got up early Friday morning and had a wonderful breakfast, then rode over to the VBR3 Rally headquarters.

 

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There was quite a lot of interest in my cooling system, everyone wanted me to demonstrate it.

 

 

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With the exception of the beginning, my presentation went well.  I make it a point to get to my events early, but as I was removing my riding gear, someone started a conversation with me outside the ski chalet where the seminars were being held.  I got away with just a few minutes to spare, but was already feeling a bit warm. I tried to get my PowerPoint presentation to display correctly on the projector and began to get confused as the room began filling up with riders. The longer it took me, the more heated I got, which cause more cognitive issues. I was a Jim Carrey movie,  getting Dumber and Dumber! I finally got it to work and was able to chill out. I had a good time speaking and reliving my 2001 Ural story. When someone tells me my story should be a movie, I take that as I did an OK job.  Needless to say, I now show my presentations on Keynote run off my iPad.

 

The Aerostich rally location was amazing!

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The whole event was top-notch!

For entertainment, there was a family-safe comedian, a  violinist strolling the grounds all weekend, a classical guitarist, and The Honeycutters band took the stage Saturday evening. All weekend long the 2013 North American Trials Championship took place on Spirit Mountain, and if you’ve never seen a trials competition, you really should check it out. The skills these riders demonstrate by balancing and controlling a motorcycle over huge rocks and obstacles without putting a foot down is utterly amazing. Great show!

 

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Over a thousand people, great music, great BBQ food and the ability to check out all the gear and clothes from the Aerostich catalog; priceless! In addition to John Ryan, some of the other seminar speakers I got to listen to were famed authors David Hough, Bob Higdon and Dr. Greg Frazier. Amazing stories and around the globe adventures all possible because of  two-wheeled machines we call motorcycles.

An amazing collection of people, real riders and enthusiasts, all in one place, all made possible by a motorcycle manufacturing company started 30 years ago by a man with an idea to create a protective suit for everyday real world riders.

I got the privilege to spend some time with Andy Goldfine, as well as attended his presentation. He told the story of Aerostich; then and now, and his vision for the future. Not just of his company, but the future of motorcycles. One of the topics he explained was riding motorcycles as a social good.  Aerostich has been at the forefront of this movement for decades by organizing events like the national Ride to Work Day. Riding a motorcycle daily is good for our planet.  See Andy’s Riding is a Social Good essay here.

Andy also spoke about how motorcycles can help us   physically, emotionally, and spiritually. He believes motorcycles will be seen as therapy, or may even be used for medicinal purposes in the future.

In front of a few hundred people,  Andy Goldfine gave validity to something I truly believe, thought about the entire 1500 mile ride home, and vow to spend the next 950,000 miles proving.

 

When I ride my motorcycle, I don’t have Multiple Sclerosis.

 

 

-Longhaulpaul

 

 

 

 

 

 

 

Unlike the timeless chicken or egg question,

we all know an itch leads to a scratch.

It was my fault, and the deeper I went in, the more I wondered if it was going to be one of those impromptu rides that turn into adventures. It was a Sunday morning this past August,  and I was bored. I couldn’t go far because of afternoon plans, but I had an itch to ride somewhere, anywhere. I decided to get lost for a few hours and found dotted lines on the Garmin I was sure I had not seen before.  These are the lines that should be dirt but sometimes turn into abandoned wagon trails from the 1800’s. I was never more than 10 miles from my home, but have no doubt, I was deep in the jungle, I had not seen a mailbox or recycle bin for miles.

 

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The Yamaha is a big trail bike, but was wearing street tires, as I am trying to get higher mileage out each set. As I write this here in December, I’m on my 5th set in nine months. THANKS to Bridgestone for helping me out in the shoe department. Motorcycle tires have to be very soft to maintain grip and safety. Which they do in most cases, when you are wearing the right tread pattern.  I needed hiking boots on this particular day, but was wearing Crocs. Street tread is not the same as street cred.  I had  just filled both my main and auxiliary tanks with gas, all 12 1/2 gallons and 75 pounds worth. The bike probably weighs 800 lbs loaded up.

Dirt roads make me smile however, and this day was no different. I smiled a lot, even when I was wondering if  it was going to be the day I got to try out the SOS button on my satellite tracker!  Although I had only made a couple of payments on the new bike, it really wasn’t NEW new,  I have about 20,000 miles on it.  I bought it to ride it , not polish it. I’ve picked up a few big bikes in my life, a friend’s overloaded Goldwing on the New Jersey Turnpike, and once on my K1200LT.  While travelling with my wife and two other couples, I tried to put my foot down onto pavement that was missing a large section- and we fell over. I was able to pick up the bike with my wife still on it before the others even saw what happened. Unfortunately I was forced to fess up later while sipping a bottle of truth serum in the hot tub, there was no hiding the fact that I was a tad bit sore.

Anyway, there’s not much to this story other than I got in too deep, turned around and had to

” Lay ‘er down to avoid an accident.”

 

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 Sunday nap!

The bike fell in the mud, and I couldn’t really get under it to pick it back up! Helmet off and picture time. Finally was able to drag the rear wheel into the tire rut and used the rut to stop it from sliding away as I tried to get it up.

 

 

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Everywhere we go, everything we do- Big brother is watching us. Why would this day be any different?

I just happened to have the Gopro camera my older brother David gave me rolling, so my silly acrobatic maneuver was caught completely  on tape.

So, the bike got it’s very first scratch, and I had a couple of pictures and some video to put together this little bit. Enjoy!

 

 

 

Who says I’m not having fun?

Longhaulpaul

 

 

Any day you can ride is a good day.

 

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